HELLENIC ASSOCIATION DERMATOLOGY - VENEREOLOGY
3D structure of Porphobilinogen deaminase HUMAN PORPHYRIA PAGE A Guide for People with Porphyria - Includes SAFE and UNSAFE drug list A Guide to Porphyria - A Complete Booklet Worth of InformationCanadian Porphyria Foundation A Heme and Iron presentation by NetBiochem A Patient with Blistering Lesions of the Hand, Hypertrichosis and Liver Disease. A patient's guide to Porphyria by Dr. Moore A personal story of a person with Porphyria. A very rare blood disorder called Acute Intermittent Acute intermittent porphyria Acute intermittent porphyria ACUTE INTERMITTENT PORPHYRIA Acute Intermittent Porphyria - Pediatric Database Acute Intermittent Porphyria (AIP) Acute Intermittent porphyria (AIP) ACUTE INTERMITTENT PORPHYRIA by Dr. Al Gandy Acute Intermittent Porphyria (AIP) OMIM Acute Intermittent Porphyria Anne LeMaistre, M.D. Acute Intermittent Porphyria Canadian Porphyria Foundation Acute Intermittent Porphyria is one of a group of hereditary hepatic Porphyrias.. Horus Global HealthNet Acute porphyria - Overview Acute Porphyrias Acute Attacks Of Neurogenic Origin Aetiology, clinical picture and investigation of the different types of porphyria: Dr. Maged N. Kamel - MediCAD Multimedia, 1995-98. Agent Orange and Porphyria Cutanea Tarda. U.S. Veteran Information AIP - Metabolic Pathway, Symptoms, and More ALA Dehydratase Deficiency Porphyria (ADP) OMIM ALA-D Porphyria Alison's Bone Marrow Transplant Fund Allyson's Vampire Page Alternative names 1998 A.D.A.M. American Liver Foundation 1425 Pompton Avenue Cedar Grove, NJ 07009 Phone: 1-800-223-0179 American Medical Association American Porphyria Foundation (APF) PO Box 22712 Houston, Texas, USA 77227 (713) 266-9617 Fax: (713) 871-1788. The American Porphyria Foundation has been established to enhance awareness and education about the Porphyrias and to aid in advancing treatment of this group of disorders. They will provide assistance to anyone wishing to start a local support group in their locality. American Prophyria Foundation P.O. Box 22712 Houston, TX 77227 (713) 266-9617 (Voice) Americans With Disabilities Act: An Overview Andre's EPP Porphyria Page Anesthetics are considered safe for general surgery Antimicrobial Agents in Porphyria Ascorbic acid deficiency in porphyria cutanea tarda by P.R.Sinclair Biochemical issues with porphyria Biochemistry of Heme Synthesis Biochemistry of Heme Synthesis Biochemistry of Porphyria Blood Cells and the CBC BONUS: Believe It Or Not -- Your Pet May Have Porphyria ! Brent Johnson's Porphyria Page Brent's AIP Forum Brent's Porphyria Page Brief Porphyria Overview (All Types) Bullous Eruption in a 36-Year-Old Man With Polycystic Kidney Disease.Diagnosis: Porphyria cutanea tarda (PCT) associated with chronic renal failure. HISTOPATHOLOGIC AND IMMUNOFLUORESCENT FINDINGS. Archives of Dermatology / volume:135 (page: 81). January 1999 C282Y Mutation in the Hemochromatosis Gene (HFE) and HCV Infection are Independent CoFactors for Porphyria Cutanea Tarda in Australian Patientsby K.A.Stuart Canadian Porphyria Foundation Box 1206 Neepawa, Manitoba R0J 1H0 Telephone: (204) 476-2800 Fax: (204) 476-2800 E-mail: email@example.com CARDIFF PORPHYRIA SERVICE Department of Medical Biochemistry University Hospital of Wales NHS Trust Heath Park Cardiff CF4 4XW Fax: 01222 766276 Contacts Professor G.H.Elder email:firstname.lastname@example.org Causes and Conditions Related to Porphyria Causes, incidence, and risk factors 1998 A.D.A.M. CBC Test [Complete Blood Count] Center For Study of Disorders of Iron and Porphyrin Metabolism Herbert L. Bonkovsky, M.D.,Director Characterization of Enzyme Defects in Porphyria Rare Diseases Clinical Trial Check out John's Super Olds Page Chelation Therapy Chelation Therapy CHEMICAL INJURY AND DISORDERS OF PORPHYRIN METABOLISM By Albert Donnay, MHS, and Grace Ziem, MD, DrPH Chemical Injury Information Network: In-House Library Resources Chemical Toxins & Treatment Cheryl Ann's Porphyria Links Cheryl Nelson's Family Page Cheryl Nelson's Porphyria Page Cheryl's Family Page Clinical Biochemistry & Urine Analysis Clinical Manifestations, Diagnosis & Treatment Clinical Study of Heme Arginate in Porphyria Clinical Study of Porphyria Patient on Long Term Prevention of Attacks Clinical Trials in Porphyria Clinical Trials in Porphyria Enzyme Defects Clinically Used Drugs Metabolized by Cytochrome P450 Common Questions about Porphyria Complications1998 A.D.A.M. Comprehensive Protocol for Evaluating Disorders of Porphyrin Metabolism in Chemically Sensitive Patients By Albert Donnay, MHS, and Grace Ziem, MD, DrPH Congenital Erythropoietic Porphyria #2 (Gunther's Disease) Congenital Erythropoietic Porphyria (CEP) OMIM Congenital erythropoietic porphyria (Gunther's disease) Congenital erythropoietic porphyria Anne LeMaistre, M.D. Contents Acute porphyrias Common features Acute Intermittent Porphyria ... Coping With Chronic Illness Coproporphyria Correction of the enzyme deficit of bone marrow cells in congenital erythropoietic porphyria by retroviral gene transfer. F Moreau-Gaudry1, C Barbot2, F Mazurier1, FX Mahon2, J Reiffers2, C Ged1 and H de Verneuil1 1 Laboratoire de Biochimie Médicale et Biologie Moléculaire, UPR-ES, Pathologie Moléculaire et Thérapie Génique, 2 Laboratoire de Greffe de Moelle, URA CNRS 1456, Université de Bordeaux II, 146, rue Léo Saignat, F-33076 Bordeaux Cedex, France. Hematol Cell Ther (1996) 38 no 2: 217-220 Create maps to find community meeting sites Ctr. for Study of Disorders of Iron and Porphyrin Metabolism Cutaneous Abnormalities and Metabolic Disturbance of Porphyrins in Patients on Maintenance Hemodialysis by G.E. Gibson Cutaneous Heme Metabolis & Porphyrias Cytochrome P-450 Definition1998 A.D.A.M. Dermatology Online Atlas (DOIA) Erlangen: Porphyria Cutanea Tarda DermPathTutor© - Porphyria Cutanea Tarda Desiree's Porphyria Story - A Lyon's Share of Trouble Diagnosis of Acute Intermittant Porphyria Diagnosis of acute porphyria © 1998-1999 René's Homie Diagnosis of Congenital Erythropoietic Porphria Diagnostic Approach To Porphyria Diaper Diagnosis of Porphyria The New England Journal of Medicine -- January 13, 1994 - Vol. 330, No. 2 Did vampires suffer from the disease porphyria--or not? Week of: 7-May-1999 Diet and Nutrition in Porphyria Diseases relevant to vampirism Disorders of Iron & Porphy Metabolism Disorders of Iron and Porphyrin Metabolism - Dr. Herbert Bonkovsky MD Doctors' Answers to Frequently Asked Questions - Porphyria Drug InfoNet Dr. Ed's Pathology Notes Dr. Michael Moore's Website-University of Queensland Dr. Micheline M. Mathews-Roth - Erthropoietic Protoporphyria Research & Education Dr. Robert J. Desnick - Molecular Genetics of Porphyria Dr. Sassa - Porphyria Researcher - Link Dr. Tom "Self-Care Central" Drug Names/Cross Reference--Trade Names/Generic Names Drug Reaction Feedback Drug Toxicology Drugs and Porphyria Drugs in acute porhyria that are Safe © 1998-1999 René's Homie Drugs in acute porhyria that are Unsafe © 1998-1999 René's Homie Drugs in acute porhyria that are Probably Safe = PS © 1998-1999 René's Homie Drugs in acute porhyria that are Probably Unsafe = PU © 1998-1999 René's Homie Drugs known to cause or exacerbate porphyria © 1999 by Metametrix, Inc, Norcross, GA Drugs Toxic to Nerves/Peripheral Neuropathy Ed's Pathology Notes on Porphyria EPD and Porphyria From: Mary Pretlow Erlangen OnLine Dermatology Atlas Erthropoietic Protoporphyria Jeanette Hebel Matthews, M.D., Department of Dermatology, Naval Medical Center San Diego and Maureen B. Poh-Fitzpatrick, M.D., Professor Emerita, Department of Dermatology, Columbia University College of Physicians, Clinical Professor of Medicine (Dermatology), University of Tennessee College of Medicine Erythrocyte Porphyrin Testing Erythropoietic Porphyria Erythropoietic Protoporphyria Erythropoietic Protoporphyria (EPP) Erythropoietic protoporphyria (EPP) Erythropoietic Protoporphyria (EPP) OMIM Erythropoietic Protoporphyria Canadian Porphyria Foundation Evaluating Disorders of Porphyrin Metabolism Evaluation of Peripheral Neuropathy Examples of Porphyria Examples of Porphyria Examples of Porphyria Examples of Porphyria Expectations (prognosis) 1998 A.D.A.M. Experimental Hepatic Porphyria Induced by Polychlorinated Biphenyls. Experimental variegate porphyria Family Village Porphyria Page Forms of porphyria. Gastro-Intestinal Neurologic and Psychiatric Manifestations of Acute Porphyria© 1998-1999 René's Homie GENERAL INFORMATION FOR ALL INDIVIDUALS WHO HAVE BEEN TOLD THEY HAVE OR MAY HAVE PORPHYRIA Written by George D. Sweeney, M.B., Ch. B., Ph.D., FRCPC Prepared for the Canadian Porphyria Foundation Genetic Disorders, Databases & Geneology Genetic Metabolic Disorders in Children Genetics in Practice Gulf War Syndrome GULF WAR VETERAN RESOURCE PAGES...Loaded with info on GWS, Agent Orange exposure and Porphyria HCP - Coproporphyria HCV in Porphyria Cutanea Tarda R MORENOOTERO, UNIV AUTONOMA MADRID, HOSP PRINCESA, UNIDAD HEPATOL, LIVER UNIT, PLANTA 3, DIEGO DE LEON 62, MADRID 28006, SPAIN
Source: JOURNAL OF INFECTION 1997 JAN;34(1):61-64
Health Answers Online HealthAnswers - Porphyria HED Foundation Hematin Hematin for Porphyria Patients Heme and Iron Heme and Iron Hemochromatose Hemochromatosis HEP and PCT Hepatic porphyria - Overview Hepatic Porphyrias Hepatoerythropoietic Porphyria (HEP) OMIM Hepatotoxins & Toxic Porphyria Hepatoerythropoietic Porphyria Anne LeMaistre, M.D. Hereditary Coproporphyria (HCP) OMIM Hereditary Coproporphyria Canadian Porphyria Foundation Hexachlorobenzene and Porphyria Cutanea Tarda. Jane J. Kim, MD; Henry W. Lim, MD. Archives of Dermatology / volume:135 (page: 459) April 1999 Histopathology of skin lesions in porphyria: Dr. Maged N. Kamel - MediCAD Multimedia, 1995-98. Holly's Haven Human Genome News Human Porphyria Page In Memory of Jacquie Incidence of Acute Hepatic Porphyria Symptomology Index of Porphyrin Labs Worldwide Index of Worldwide Porphyria Labs Information about porphyria Information on the Acute Porphyria's Information on Urine Porphyrins Institute of Medical Genetics International Directory of Porphyria Laboratories Interpretation of Abnormal Porphyrin Test Results © 1999 by Metametrix, Inc, Norcross, GA Intoxication Porphyria Intoxication Porphyria This is a syndrome that develops when toxic chemicals or heavy metals interfere with the enzymes that metabolize the intermediates in the production of heme which makes hemoglobin for our red blood cells. This is a new concept concerning the manner in which these environmental toxins can cause symptomatic illness. Some of the symptoms that may be experienced are:....`` Stephen B. Edelson, M.D., F.A.A.F.P., F.A.A.E.M. The Edelson Center for Environmental and Preventive Medicine 3833 Roswell Road, Suite 110 • Atlanta, GA 30342 • (404) 841-0088 • FAX: (404) 841-6416 INTOXICATION PORPHYRIA...Gulf War Syndrome? IntroductionAnne LeMaistre, M.D. John's Porphyria Chat Forum Jude's Porphyria Page Katherine's Porphyria Page King George III of England King George the II and Porphyria Laboratory Diagnosis in Porphyria LABORATORY DIAGNOSIS OF PORPHYRIA (WG-LDP) LABORATORY DIAGNOSIS OF PORPHYRIA.© 1998-1999 René's Homie Laboratory Diagnosis Summary Anne LeMaistre, M.D. Laboratory features of the cutaneous porphyrias. Laboratory Tests - Manual of Laboratory, X-Ray and Special Procedures Lack of Effect of Oral Charcoal in Congenital Erythropoietic PorphyriaThe New England Journal of Medicine -- April 14, 1994 -- Vol. 330, No. 15 Lead Poison Phenocopy of Porphyria Little Things Mean So Much - Lisa's Porphyria Web Liver Function Tests Madness of George III; Porphyria??? Management of the acute Porphyria attack © 1998-1999 René's Homie Mara's Porphyria Journey Mara's Porphyria Page Mary´s Safe Arbor Mechanism of porphyrin-induced photosensitivity: Dr. Maged N. Kamel - MediCAD Multimedia, 1995-98. Med Help International (medical library forums etc.) Medscape - A database of medical articles from credible sources Medscape - The Online Resource For Better Patient Care Merck Manual Online Mercury Sets off Porphyria Article METABOLIC BASIS AND CHARACTERISTIC FEATURES OF THE PORPHYRIAS Metabolic Basis and Characteristics of Porphyria Metabolic Disorders - Porphyrias: Clinical Manifestations, Diagnosis and Treatment MORE INFORMATION ON PORPHYRIA More On All The Porphyria Mr Huskey's list of Porphyria links Multiple Chemical Sensitivity Syndrome and Porphyria: A Note of Caution and Concern. Martin Hahn* , M.D., Herbert L. Bonkovsky, M.D. Departments of Medicine, Biochemistry and Molecular Biology, and The Center for Study of Disorders of Iron and Porphyrin Metabolism, University of Massachusetts Medical Center, Worcester, MA, and the Department of Gastroenterology and Hepatology, Oregon Health Sciences University, Portland, Oregon, USA. Multiple Chemical Sensitivities and Porphyria Multiple Chemical Sensitivities and Porphyria Index Multiple Chemical Sensitivity Syndrome (MCSS) and Porphyria My feelings about Porphyria National Library of Public Medicine National Organization for Rare Disorders Nature Science Update - Vampire Plants Neuromuscular Porphyria Link Nutritional Guidelines For People With Porphyria Nutritional Support for Porphyria Office of Rare Disease Research OMIM Database entry for Phorphyria cutanea Tarda OMIM Database Entry for Phorphyria cutanea Tarda type 1 On-Line Mendelian Inheritance in Man Page Nutritional Diseases and Disorders Pathophysiology and Genetic Defects in Porphyria Pat´s Porphyria Page Pat's Olds & Froggy Page Pat's Treefrog and Porphyria Page PCT and the Hepatitis C Virus Pedigree of Variegate Porphyria Persian Gulf Syndrome May Be Porphyria Phase I Clinical Trial in Porphyria Using Heme Arginate Phase I Study of Heme Arginate With or Without Tin Mesoporphyrin in Patients with Acute Attacks of Porphyria Phase I Study of Tin Mesoporphyrin in Patients on Long Term Heme Therapy for Prevention of Acute Attacks of Porphyria Phase II Study of Heme Arginate With or Without Tin Mesoporphyrin in Patients with Acute Intermittent Porphyria in Remission Phorph Team Website Picture Gallery - Porphyria cutanea tarda with hemochromatosis Pictures of The Skin in Variegate Porphyria Did you know.... The terms "Porphyria" and "Porphyrin" come from the Greek word "porphyrus" meaning purple? It's True! Urine from some Porphyria patients may be reddish in color due to the presence of excess porphyrins! Polyneuropathy Differential Diagnosis Porphria, MS & Genetics PorphTeam Web Page PorphTeam Web Page Porphynet Porphyria This information is from the National Digestive Diseases Information Clearinghouse (NDDIC), a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health (NIH). Porphyria is a disorder in which the body produces too much of the chemical porphyrin. Porphyrin is used to make heme, the part of blood that carries oxygen. Heme also gives blood its color. Any circulating porphyrin the body doesn't use is excreted in urine and stool. When the body produces and excretes too much porphyrin, as happens with porphyria, not enough heme remains to keep a person healthy. healthtouch.com Porphyria Porphyrins are chemical compounds which are involved in the formation of haem in man and chlorophyll in plants. They are responsible for the fact that blood is red and grass is green. Haem is a component of the essential red pigment haemoglobin which carries oxygen in the blood.
In porphyria, the cells do not convert porphyrins to haem in a normal manner. Because of this, porphyrins build up in the body and are excreted in the urine and stool in excessive amounts. When one porphyrin is present in very high amounts, it causes the urine to have a striking port wine colour after short exposure to light. The symptoms of porphyria fall into two major groups. Some patients have attacks in which the nerves of the body do not function properly. Abdominal pain and weakness result. Other patients have problems with the parts of the skin that are exposed to the sun and develop pain and swelling of the skin or blisters. Treatment is available for both types of symptoms. Rarely, some porphyrias cause severe liver damage, and occasionally liver transplantation is the only option. The disease can appear in childhood, but the onset is most often between the ages of 20 and 40. British Liver Trust Information Service
Porphyria Porphyria British Liver Trust Information Service Porphyria NIDDK Porphyria porphyria PORPHYRIA American Liver Foundation 1425 Pompton Avenue Cedar Grove, NJ 07009 1-800-GO LIVER (465-4837) The American Liver Foundation is a national voluntary health organization dedicated to preventing, treating, and curing hepatitis and other liver and gallbladder diseases through research and education. Porphyria Links to websites which may include treatments, cures, diagnosis, prevention, support groups, email lists, messageboards, personal stories, risk factors, statistics, research and more. HealthlinkUSA Porphyria Porphyria Gastrointestinal Health Porphyria Porphyria By Andrew Pidcock Porphyria Menu This is a webforum to discuss and comment on Porphyria. Massachusetts General Hospital, Porphyria UK sources of information and / or support PORPHYRIA - A PATIENT'S GUIDE MICHAEL R. MOORE - PORPHYRIA RESEARCH UNIT THE UNIVERSITY OF QUEENSLAND, NRCET, DEPARTMENT OF MEDICINE 1998 PORPHYRIA - A PATIENT'S GUIDE ACUTE PORPHYRIA - DRUG LISTS - DIAGNOSIS - MANAGEMENT & THERAPY. MICHAEL R. MOORE. PORPHYRIA RESEARCH UNIT. THE UNIVERSITY OF QUEENSLAND, NRCET, DEPARTMENT OF MEDICINE 1999 Porphyria - "There is hope", says victim Porphyria- Doctors' Answers to Frequently Asked Questions - Drug Infonet Porphyria - Daughter's persistence leads to diagnosis of Porphyria - Is Porphyria Cutanea Tarda Dangerous? Porphyria - Worldwide Pen-Pal Program PORPHYRIA - Pediatric Symptoms, Illness, & Medications 1999 HealthGate Porphyria & Nutrition Porphyria``Diseases characterized by problems in the heme synthesis biochemical pathways. (See chart below.) This is often the base cause of Multiple Chemical Sensitivities (MCS), light sensitivity, some forms of skin problems, and wine colored or purple urine; but is not the only condition that can cause these problems.`` Porphyria Anatomy Porphyria and Gulf War Syndrome Porphyria and Haem Synthesis by Molly Sharp Porphyria and Lycanthropy The disease porphyria may have led to accusations of lycanthropy or vampirism. Porphyria and Vampirism Porphyria Archive - The Neurology and Neurosurgery Forum PORPHYRIA AROUND THE WORLD Porphyria Bulletin Board Porphyria By Dr. Moyra Smith Porphyria Chat Porphyria Chat Page Porphyria Chat Room Porphyria Chat Room - "Real Time" Porphyria Chat Room For Kids - "Real Time" PORPHYRIA CLINIC Department of Dermatology The University of Barcelona Chairman: Prof. Jose M. Mascaro Porphyria- Clinical Trials in Preventing Cyclic Attacks in Women porphyria cutanea tarda Porphyria cutanea tarda Porphyria Cutanea Tarda IMAGES Dermatology Internet Service Porphyria Cutanea Tarda Microscopy image. The Mount Sinai Medical Center -Department of Dermatology Porphyria cutanea tarda IMAGE. mmd THE WWW DERMATOLOGY DATABASE. Porphyria Cutanea Tarda Porphyria Cutanea Tarda (PCT) Porphyria cutanea tarda (PCT) Porphyria Cutanea Tarda (PCT) OMIM Porphyria Cutanea Tarda and Hepatitis C Porphyria Cutanea Tarda Anne LeMaistre, M.D. Porphyria Cutanea Tarda Authored by Maureen Poh-Fitzpatrick, M.D., Special Lecturer, Department of Dermatology, Columbia University College of Physicians & Surgeons, and Clinical Professor of Medicine, Division of Dermatology, University of Tennessee College of Medicine Porphyria Cutanea Tarda by G.H. Elder Porphyria Cutanea Tarda Canadian Porphyria Foundation PORPHYRIA CUTANEA TARDA Ved nedsatt aktivitet av enzymer i leveren kan man få en lysfølsomhet i huden. Lysfølsomheten viser seg ofte i form av sår og eksem på håndryggene. Porphyria cutanea tarda - Don't forget to look at the urine Michael W. Rich, MD VOL 105 / NO 4 / APRIL 1999 / POSTGRADUATE MEDICINE Porphyria Cutanea Tarda,Dorsal Hands Rhett Drugge, M.D. Porphyria cutanea tarda Photographs Porphyria cutanea tarda The New England Journal of Medicine -- October 13, 1994 -- Vol. 331, No. 15 Porphyria Cutanea Tarda, HCV, and HFE Gene Mutations in North Americaby H. L. Bonkovsky et al. Porphyria Cutaneous Tarda [PCT] Porphyria Cutaneous Tarda [PCT] #2 Porphyria Descriptions Porphyria Facts Porphyria Family and Friends Club Porphyria Family Village-University of Wisconsin Porphyria Health Answers Site Porphyria Information Porphyria Information Porphyria is underdiagnosed This article submitted by Mariel on 10/18/97. PORPHYRIANeuromuscular home page Porphyria Page Porphyria patient guide from Queensland, Dr. Micheal Moore's Guide Porphyria Place - Tammy Evan's HomePage Porphyria Research Unit University of Queensland NRCET Department of Medicine. Phone: 61 7 3274 9009 Porphyria Self-Assessment Porphyria Subject Indices Porphyria Symptom Checklist Porphyria Symptom Check List Porphyria Team Web Page PORPHYRIAThe American Liver Foundation PORPHYRIA - thrive@health Porphyria Treatment Porphyria - Treatment Porphyria UNSAFE DRUG List © 1999 Diana Deats-O'Reilly, Porphyrin Press, and Porphyria Educational Services. PORPHYRIA VARIEGATA Porphyria VP Gene Found Porphyria Web Forum Porphyria Web Links PORPHYRIA WUNDERLAND Porphyria, Congenital Erythropoietic Porphyria, Hereditary Coproporphyria Porphyria, Variegate - Disease Information Porphyria: A Patient's Guide Porphyria: Erythropoietic and Hepatic Types Porphyria: The Unknown Disease PORPHYRIAS DEPARTMENT OF CHEMICAL PATHOLOGY THE CHINESE UNIVERSITY OF HONG KONG. Porphyrias Porphyrias Porphyrias Porphyrias (in development) Porphyrias and Haem Synthesis Porphyria's Lover Porphyria's Lover. Robert Browning Porphyrias: Clinical Manifestations, Diagnosis and Treatment Bernardo Haddock Lobo Goulart & Samanta Teixeira Basto Porphyrias: Introduction, Types and Laboratory Diagnosis Summary Porphyrias: Overview Laboratory Corporation of America® Holdings and Lexi-Comp Inc. PORPHYRIAS: UNSAFE DRUGS Neuromuscular home page Porphyric Peripheral Neuropathy - a Hypothesis Porphyrin / Heme Pathways Porphyrins and Porphyrias 1997 Meeting Page Porphyrins, Quantitative, Urine (003194) Laboratory Corporation of America® Holdings and Lexi-Comp Inc Prevention1998 A.D.A.M. Problems of Iron & Porphyrin Metabolism Protocol for Evaluating Porphyria Protoporphyria (EPP) Protoporphyrin, Free Erythrocyte, and Zinc Protoporphyrin Protoporphyria Anne LeMaistre, M.D. Protoporphyringogen Oxidase [HCP] Pseudoporphyria http Queen Charlotte, Consort of King George Queensland Safe/Unsafe Drug Lists Rare Diseases Clinical Research Database - Porphyria Rare Diseases Clinical Trials Pertaining to Porphyria Re: madness of George III; porphyria??? Rene Gessel Porphyria Pages & Drug Lists Rene's Porphyria Page Research clinical trials available worldwide Role of Viral Infection in Porphyria Cutanea Tarda by H.W.Lim Ron's Porphyria and Photosensitivity Page Safe Anesthetics For Porphyria Patients (General Surgery) The following anesthetics have been researched and verified by anesthesiologists and were distributed at a Nurse Anesthetist Conference Spring 1999. © 1999 Diana Deats-O'Reilly, Porphyrin Press, and Porphyria Educational Services. Safety of general anesthesia and surgery in acute hepatic porphyria Sample Collection and Shipping For Porphyrin Testing Scarlett's Porphyria Page Seltene Hautveränderungen bei Porphyria cutanea tarda Seltene Hautveränderunge... bei Porphyria cutanea tarda Miklos Simon jr. Dermatologische Universitäts-Klinik und Poliklinik Erlangen (Direktor: Prof. Dr. O.P. Hornstein) Erschienen in Dermatologie im Bild 21, 36-45 (1993) Shelly's Porphyria Page Sick Buildings Sickle cell trait and acute intermittent porphyria leading to small bowel infarction M.R. BUDHOO, S. MITCHELL, J. EDDLESTONE and I. MACLENNAN. Department of General and Colorectal Surgery, Manchester Royal Infirmary, Manchester, U.K. J.R.Coll.Surg.Edinb.44, April 1999, 130-131 Signs and tests 1998 A.D.A.M. Sites of interest for Physicians and Molecolar Biologists. HUMAN PORPHYRIA PAGE Social Security Disability Questions & Answers Study of Gonadotropin-Releasing Hormone Analogues in the Prevention of Cyclic Attacks of Acute Porphyria in Women Rare Diseases Clinical Trial Summary of Porphyria Syndromes Summary of Porphyrin & Heme Synthesis Susceptability to Environmental Chemical [Dr. Wm. E. Morton M.D. Symptomatology of the porphyrinopathies © 1999 by Metametrix, Inc, Norcross, GA Symptoms 1998 A.D.A.M. Swedish Porphyria is AIP Swedish Porphyria is another name for AIP, just like Pyrroloporphyria or Waldenstrom's Porphyria. Telemedicine Consultations Testing for the Porphyrias Testing for Toxic Metal- and Chemical-Induced Porphyrinuria Carl P. Verdon, Ph.D., Terry A. Pollock, M.S. and J. Alexander Bralley, Ph.D., C.C.N. © 1999 by Metametrix, Inc, Norcross, GA Texas Medical Center Descriptions The Acute Porphyria Theories The American Porphyria Foundation American Porphyria Foundation (APF) PO Box 22712 Houston, Texas, USA 77227 (713) 266-9617 Fax: (713) 871-1788 The Cloning and Characterization of the Gene that Encodes Protoporphyrinogen Oxidase The Heme Biosynthetic Pathway © 1999 by Metametrix, Inc, Norcross, GA The History of Porphyria ©© 1998-1999 René's Homie The International Meeting "Millenium Porphyrins and Porphyrias 2000" will be held in Paris, France in September 2000 Contact address: Professor J. Ch. Deybach Centre Français des Porphyrias Hôpital Louis Mourier 92701 Colombes Cedex FRANCE Tel: +33 1 47606017 +33 1 47606334 Fax: +33 1 47606703, e-mail: email@example.com The National Institute of Diabetes and Digestive and Kidney Diseases The National Organization for Rare Disorders, Inc. The Obour - Discusses Porphria The Persuit of Medical Excellence by Heather Parker - VP The Playground The PorphDoc Chat Page The PorphTeam Web Page The Porphy Home The Porphyria Scam. The Resurgance of Genetic Inferiority? Daniel Shaddox. The Porphyrias The Porphyrias The Porphyrias - Dr. Maged Nabih Kamel The Porphyrias - Ed Friedlander, M.D. THE PORPHYRIAS © Dr. Maged N. Kamel - MediCAD Multimedia, 1995-98. THE PORPHYRIAS Ed Friedlander, M.D., Chairman, Dept. of Pathology University of Health Sciences, MO -- March 24, 1994 firstname.lastname@example.org THE PORPHYRIAS Ed Friedlander, M.D., Chairman, Dept. of Pathology University of Health Sciences, MO -- March 24, 1994 email@example.com The Porphteam - a group of porphyria sufferers ..... The South African Medicines Formulary Toxic Metals and Porphyria © 1999 by Metametrix, Inc, Norcross, GA Treatment 1998 A.D.A.M. Treatment of porphyria: Dr. Maged N. Kamel - MediCAD Multimedia, 1995-98. Treatment of Porphyria cutanea tarda with Oral Thalidomide. Monastirli A, Georgiou S, Bolsen K, Pasmatzi E, Papapanagiotou A, Goerz G, Kalofoutis A, Merk HF, Tsambaos D. Department of Dermatology, University of Patras, Greece. Skin Pharmacol Appl Skin Physiol. 1999 Nov;12(6):305-311. Types of Porphyrias Anne LeMaistre, M.D. U.S. Food and Drug Administration - notices of medicine and medical device approvals Understanding Your CBC University of Cape Town (Gene Defect Causing VP) University of Cape Town/Medical Research Council - Includes Porphyria Information for Patients and their Families, Porphyria Information for Doctors and Drug Safety in Porphyria Urinary Porphobilinogen Testing [PBG] Urinary Porphyrin Excretion in a Human Population Highly Exposed to Hexachlorobenzene Carmen Herrero, MD; Dolores Ozalla, PhD; Maria Sala, MD; Raquel Otero, PhD; Maria Santiago-Silva, PhD; Mario Lecha, MD; Jordi To-Figueras, PhD; Ramon Deulofeu, PhD; Jose Maria Mascaro, MD; Joan Grimalt, PhD; Jordi Sunyer, MD. Archives of Dermatology / volume:135 (page: 400). April 1999 Urine Porphyrins Urine Porphyrins - thrive@health Urine Porphyrins 1999 HealthGate Uroporphyrinogen-I Synthase (Uroporphyrionogen-I Synthetase; Porphobilinogen Deaminase) 1999 HealthGate US Laboratories and Physicians Use of olanzapine in hereditary coproporphyria V THE PORPHYRIAS 1999, Scientific American, Inc Vampires and Porphyria VARIEGATA PORPHYRIA (VP) Variegata Porphyria (VP) and Multiple Sclerosis (MS) Variegate Porphyria Variegate Porphyria - University of Virginia Variegate Porphyria (2) Variegate Porphyria (VP) HUMAN GENETICS FACULTY OF MEDICINE UNIVERSITY OF STELLENBOSCH Variegate porphyria (VP) Variegate Porphyria (VP) OMIM VARIEGATE PORPHYRIA AFFECTING TENS OF THOUSANDS OF SOUTH AFRICANS Variegate porphyria Anne LeMaistre, M.D. Variegate Porphyria Gene Located University of Cape Town Variegate Porphyria Pedigree Veriegate Porphyria Various causes and conditions related to porphyria © 1999 by Metametrix, Inc, Norcross, GA Was Dracula victim of unusual disease? By: Leslie Papp (Toronto Star Medical Reporter) Broadcasted on BICNews 1 November 1997 Washington Univ. Descriptions and Links Welcome to the Experimental Porphyrias at the Institute of Pathophysiology in Prague! This page provides information on our porphyria-related research to any welcome quest. Porphyria research is a traditional topics at the Institute of Pathophysiology of the First Medical Faculty in Prague, Czech Republic. Welcome to Porphyrins and Porphyrias! What is Porphyria? What is porphyria cutanea tarda (PCT)? When the Sun Can't Shine - for youngsters with EPP Why Do I Have Porphyria ? Yahoo! Health:Diseases and Conditions:Porphyria
Collection by George Karakatsanis, Dermatologist, Thessaloniki, Greece